Nicholas is getting settled back in at McLeod quickly. He's back down to 2 liters on his flow and that's where he was at before the trip to Charleston. McLeod has listened to most of the suggestions by MUSC thus far. The only 1 they were hesitant on was the bottle feeding. They asked if we were okay with Nicholas still receiving his bottles and we opted to wait. We would just like to see if that is the reason why he seems to be stuck on the higher flow.
The new changes involve a diuretic daily, a change in the steroid being used in his respiratory treatments (this will go deeper in his lungs and there will be more of it going in), and of course to hold off on the bottles for a little while. These changes were suggested by the pulmonologist.
Nicholas currently weighs 6lbs6oz and is 17 3/4" long.
I am speaking for quite a few people. We are very glad that NICHOLAS and HIS MOM and DAD are back in Florence and back on the web. It is so very good to be able to see and read what the latest events are with NICHOLAS. We love you all and pray for the best for all three of you. NICHOLAS is so very lucky to have you for parents,people everywhere that love him,his family and people at McLeod that love him also. He is a much loved little boy; many prayers have been sent up for all three of you and we will continue to pray. We love you NICHOLAS. Nana and Papa
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