Monday, April 9, 2012

Luke 11:33-36

"Your eye is the lamp of your body.  When your eyes are good, your whole body is full of light.  But when they are bad, your body also is full of darkness."


That was part of my daily Bible reading last Thursday.  By the time I read that scripture I'd already known Nicholas was going to have to go back to MUSC to be re-evaluated by Dr. Teed.  Before I begin to tell you what happened please keep in mind that this will have no detailed or scientific descriptions of what Dr. Teed told us as we were a little surprised by the news.

We arrived at MUSC around 9:15 am and went over to the Storm Eye Institute and let them know we had arrived.  We had to give Nicholas his bottle in the lobby as he eats at 10 and we thought he would be back with the doctor then.  At about 10:45 we were back in the room waiting when a nurse came in to numb Nicholas' eyes for the exam.  From then until 11:15 am we waited.

When Dr. Teed walked in he started to say something about 2 instances and I said we have already heard.  To clarify what I meant was that I saw on the news this week that there had been an instance where Avastan (what Nicholas had injected the first time in his eyes) was found to be inactive at certain facilities in the US and this was the second time this had happened this year.  Dr. Teed was going to tell us that he'd had to inject 2 other babies again with the Avastan.  After he told us this we still went ahead and asked him about the inactive Avastan and he said those cases were found to be in cancer patients (that is the drugs primary use and it fairly new in babies).

So, after the chit chat was over Dr. Teed took a look at Nicholas.  He said part of Nicholas' eyes were engorged but that the other part was a good ways away from needing to perform any kind of procedure.  Meaning, both places would've had to have been bad for another injection or laser treatment to be done.  He said the laser treatment was probably going to be the choice (if necessary) because once you get to a certain point with the Avastan and it doesn't work another dose of it could make the ROP worse than its current condition.  We also asked if Nicholas would be in the clear after he reaches the 54 week mark (he's currently 50 weeks) and Dr. Teed said if not then it would be soon after.  To clarify the 54 week mark is usually the point where ROP is no longer a threat.  Dr. Teed concluded the exam by telling us that he's planning on coming to Florence on the 20th to see some other patients and he would like to check on Nicholas to make sure everything is still ok.

To summarize, Nicholas currently does not need any procedure done and Dr. Teed will re-examine Nicholas on the 20th.  Sorry there are no pictures.  I wanted to take a picture of Dr. Teed examining Nicholas but as soon as I went to take the first picture the battery died.  Oh well.  We got the news we were hoping for and we can't ask for any more than that.

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